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Welcome to Atlantic Currents, a bi-weekly column from the staff at The Atlantic Philanthropies on topics of interest in the work we are most concerned about: making lasting changes in the lives of disadvantaged and vulnerable people. In this column, we hope you will come to know more about Atlantic and the organizations, initiatives, and individuals we are privileged to support around the world.
Recent Entries
As 2008 draws to a close, organisations, just like individuals, should take a moment to reflect on the challenges and accomplishments of the year that is ending, and prepare for the one ahead. I’d like to do that, in this final column of an eventful year, by revisiting a few of the things I’ve written and reported on.
From all of us at Atlantic, our very best wishes for a 2009 in which the moral arc of the universe bends more sharply toward justice.
Gara LaMarche
gara@atlanticphilanthropies.org
In the United States, we are about to engage in a potentially historic debate about long-overdue reform of our inadequate health care system, and big change may be on the way. That is exactly what we need because our current system is failing the very young and very old and everyone in between, including adolescents, a group we (mistakenly) don’t often associate with major health problems, much less as a priority in health reform.
How our system fails to deliver the best possible care to 42 million adolescents in the U.S., ages 10 to 19, is the subject of an illuminating and timely report released today by the respected Institute of Medicine (IOM) and National Research Council. Funded by Atlantic, this report, "Adolescent Health Services: Missing Opportunities", was not cobbled together in a hurry to influence the new administration and Congress, but rather was in the works for more than two years and reflects a comprehensive review by an expert panel of all of the significant research evidence available. The contributors to this report were motivated by the desire to see our health care system invest in the nation’s future by ensuring that adolescents get the best care possible. Not surprisingly, the report finds the U.S. health care system woefully lacking for adolescents, and while it focuses on shortcomings related to young people, the report’s findings are relevant to the broader health reform debate and deserve our full attention.
When it comes to how the system treats young people, the specifics of the indictment are clear. At least five million adolescents lack health coverage of any kind. The care they receive for chronic illnesses, such as asthma, depression and diabetes, is often ineffective, and preventive care is nearly non-existent. At the heart of the problem is the dearth of well-trained health professionals who understand the particular needs of young adults, a lack of thoughtful co-ordination of care, and gaping chasms in private and public insurance programmes, which block millions of adolescents from consistent access to coverage and care. For instance, when many young people turn 18, they are dropped from their parents’ plans or public programmes, but they frequently cannot find affordable plans for themselves, so they go without health insurance. Add to this mix the fact that adolescents experience tough physical and emotional challenges during the transition to adulthood, sometimes take risks they should not, and often justifiably feel that health care professionals don’t understand them. The results are at times dramatic, even deadly, especially for young people from low-income families and communities of colour, who are the least likely to have access to coverage and care.
The severe consequences of such gaps in care are made clear by the case of Marcus Campbell, pictured above, a young athlete who suffered for years from untreated asthma. He is one of three students featured in a video documentary released with the report. Marcus’s untreated asthma prevented him from playing sports and compelled him to visit emergency rooms nearly 15 times a year for the treatment of severe asthma attacks. “When I really had a bad attack,” said Marcus, “they would keep me in the emergency room for maybe 8 or 9 hours… But when I would leave the hospital, I knew I was going to be back.” Marcus knew he would return to the ER because he had no access to regular care and emergency health professionals never taught him how to manage his illness. That is, until tragedy struck. One night, Marcus’s 10 year-old brother, also severely asthmatic, died of an attack. After this completely preventable and devastating loss, the family was finally educated about how to avoid triggers that can lead to acute, deadly attacks. Now, Marcus is doing much better and is able to hit the basketball court with near abandon, and he even coaches youth basketball in his community.
Unfortunately, Marcus, his brother and other adolescents are not the only ones to suffer from gaps in coverage and a lack of high-quality care for chronic illness. More than 13 million people age 65 and over have three or more chronic conditions, and they too face similar challenges related to a lack of quality care, gaps in coverage, and a dearth of physicians trained to care for the special needs of older adults.
Clearly, our health care system is not delivering affordable, quality coverage for all. Overall, Americans are paying too much money for too little health care. Nearly 50 million Americans have no health coverage, and very few of those who have coverage get consistently top-notch care based on medical evidence, especially those people with one or more chronic illnesses. Both the systems for financing and the delivery of care in the U.S. are broken and need to be fixed, and that is why Atlantic is supporting Health Care for America Now (HCAN), a coalition of hundreds of advocacy organisations working to ensure that the new administration and Congress craft, pass and sign legislation in support of quality, affordable health care for all in the U.S. Furthermore, to address the health needs of adolescents through innovative approaches, Atlantic is supporting the Elev8 initiative in up to four states, which is working to provide comprehensive school-based health care to middle school youth. There is much that our elected officials can learn from the leaders of the Elev8 projects as they craft solutions aimed at ensuring that young people in their communities have access to quality health care.
These efforts and today’s new report from the IOM underscore the need to act on health care system reform and to do so both boldly and thoughtfully, accommodating the needs of everyone: young and old; blacks, Hispanics and whites; women and men; the disabled, chronically ill and healthy. In a recent conversation with Atlantic staff, the report’s authors acknowledged that many of the problems that adolescents face around access to quality care are similar to the problems that other groups face, including older adults. As members of President-elect Obama’s team and the new Congress prepare to fix the U.S. health care system, I recommend that they add the IOM’s report to their end-of-year reading lists and watch the accompanying DVD with their families. As a nation, we can do much better, and perhaps this time we will.
Coda
It is bittersweet that this report is sensitively dedicated to Debra Delgado, the programme executive in Atlantic’s Disadvantaged Children & Youth Programme who shepherded this project until her death a year ago at age 50 from cancer. Debra’s commitment to the health of young people was deeply felt and drove her to work on this and many other projects. Debra was one of the first in our office to pin a picture of Barack Obama on her bulletin board, and when we think of how this report may contribute to improvements in our health care system under President Obama, we can see Debra’s big smile in our mind’s eye. To read the full dedication to Debra, please click on this link.
Gara LaMarche
gara@atlanticphilanthropies.org
Links to organisations mentioned in this column:
The transition from apartheid to the new South Africa is rightfully viewed as one of the major advances in human history toward equality and democracy. But as I have written here before, many problems still exist: the South African government became an object of ridicule, and many lives were lost, with former President Mbeki’s denial of the relationship between HIV and AIDS; xenophobic violence erupted this summer against Zimbabwean refugees fleeing from President Mugabe’s reign of terror; lesbian and gay South Africans, particularly those in rural areas, are often victims of “corrective rape” or other forms of violence and intolerance despite the acknowledgement of the South African courts and Parliament that they have the right to marry; and the economic divide between those who live in comfort and most people in South Africa is widening.
Since 2002, The Atlantic Philanthropies has supported efforts in South Africa to address a number of these issues. I want to share today a less well-known example of injustice with its roots in apartheid – the plight of South Africa’s rural poor, including the unjust and unlawful evictions of nearly one million farm dwellers in the decade after South Africa adopted its new constitution in 1994. Incredibly, the widespread problem of farm dweller evictions was almost invisible until a group of sixteen NGOs in South Africa banded together with support from Atlantic to tell the story of evicted farm dwellers.
To highlight that issue, Atlantic has launched “ What We’ve Learned: Lessons From A Communications Campaign for South Africa’s Rural Poor,” the second publication in its Atlantic Reports series. The report describes the experience of Atlantic and its grantees focuses on using communications to advance human rights; specifically, it highlights the Farm Life in South Africa Project, a campaign Atlantic funded over a number of years to raise awareness of a social injustice and the living conditions of farm workers and the rural poor in South Africa. The report shares lessons from the first phase of the campaign in 2004-2006, which are relevant for funders, nonprofits and advocates around the world interested in using communications to elevate a human rights issue, and describes how the campaign partners are applying those lessons in their ongoing work.
The publication opens with the story of a family, the Skhosanas, interviewed by one of Atlantic’s grantees, Social Surveys Africa:
Until 2001, they survived relatively well on the farm. They had a tap for water; they had firewood. Then the farm was sold to a new owner who wanted the Skhosanas off the land.For two years, they fought eviction. After all, this was the “new” South Africa, and, for the first time, they had rights. But the farm owner shut down their water tap and ordered them to stop gathering wood on his land. Finally, the owner came early one morning when the children were still asleep, broke down the door, and threw the family’s furniture and belongings onto the road. The children were afraid they would have nowhere to sleep. Mr. Skhosana was ill at the time. Mrs. Skhosana says she will never forget the experience of “being thrown out like rubbish”.
Staff members of community organisations had known for years that black farm dwellers, including farmworkers and their families, were being kicked off farm land in post-apartheid South Africa without legal recourse. But without the data to show the scale or impact of the evictions, policy makers paid little attention to the issue. Furthermore, when the Farm Life Project began in 2004, the South African government did not have a clear or integrated rural development programme. The number of commercial farms was dropping throughout the country, resources were scarce in rural community organisations and many evictees did not know they had “tenure” or residency rights and even more didn’t know where to get help.
To demonstrate the breadth and depth of the crisis and help elevate it on the policy agenda, in 2005 Social Surveys and the Nkuzi Development Association developed the National Evictions Survey, the cornerstone of the Farm Life in South Africa Project.
“Atlantic helped initiate the Farm Life in South Africa Project, arising from the work of grantees to combat illegal evictions from farms,” said Gerald Kraak, programme executive for Reconciliation & Human Rights in South Africa. “The foundation funded research to identify the scale of the problem, launched a national education awareness campaign to inform the public about the findings of the study and supported a national advocacy campaign targeting government, with recommendations to prevent ongoing evictions from farms.”
The Project brought together a handful of research, grassroots, legal rights and arts organisations to assess and publicize the current status and living conditions of the nation’s farm dwellers, with Atlantic’s support. The Project explained the predicament of farmworkers and farm dwellers and clarified the impact of the evictions on the stability and well-being of South Africa’s rural communities. Over a number of years, they stimulated a national policy discussion and began addressing the challenges of keeping this issue on the national and social agenda over time.
In addition to the National Evictions Survey, the campaign integrated multiple communications tactics, including commissioning documentary photographs of farm life by photographer Jurgen Schadeberg, publishing them in the book, Voices from the Land, and sharing them in a travelling exhibit which toured both cities and rural areas.
This publication describes the planning and execution of these efforts in 2004-2006, some of which were successful and some not. It also shares lessons from the campaign and describes how partners in the campaign are currently applying the lessons they have learned in their ongoing work, including:
The publication concludes by explaining the continuing challenges of responding to rural poverty in South Africa and around the world. It examines potential policy solutions and how funders and nonprofit organisations can influence social change at a systemic level, such as amplifying the voices of the rural poor globally to engage in policy discussions that will impact their lives.
Despite the achievements of this multi-pronged campaign, almost three million black South Africans remain marginalised, living on farms owned mostly by white farmers. But, the future is beginning to look brighter as the policy environment for rural issues in South Africa is improving in the post-Mbeki era.
There are numerous challenges to overcome before South Africa can be the society it has fought so hard to become. But with its progressive constitution and new National Assembly elections this coming April, there is hope that opportunities for change and the advancement of social justice are on the horizon.
Gara LaMarche
gara@atlanticphilanthropies.org
Links to organisations mentioned in this column:
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